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Massachusetts Health Data Consortium Health IT Innovators since 1978
HISPC - Tackling Patient Privacy and Security

Federal privacy laws, most notably the Privacy Act of 1974 and HIPAA, form the legal foundation for privacy and security in the healthcare sector, however, variation in state laws and requirements for obtaining patient consent for the disclosure of information complicate the design for electronic health networks. These laws were created for a paper-based healthcare world, not the emerging electronic health care information exchange environment.  While the need to protect consumer health information remains the same the risks and benefits of electronic interchange have created a vibrant consideration of the issues and the process to resolve.

Beginning in 2006, the Department of Health and Human Services funded significant initiatives through a new Office of the National Coordinator (ONC) to play a key role to lay the groundwork to support widespread interoperable electronic health information exchange. ONC has become responsible for nationwide coordination of projects that have moved forward the needed parameters for technical and policy challenges and priorities, and supported the development of required content and process knowledge people and project resources. 

The Privacy and Security Projects have been carried out through the Health Information Security and Privacy Collaboration (HISPC).   HISPC 2006 – 2009 has been one of the nationwide initiatives to identify and address barriers and challenges to health information exchange (HIE).

Goals have been to:
  • Preserve privacy and security protections in a manner consistent with interoperable HIE exchange;  
  • Promote stakeholder identification of practical solutions and implementation strategies through an open and transparent consensus-building process; and  
  • Create a knowledge-base about privacy and security issues in electronic HIE in states and communities that can endure to inform future HIE activities.



 
 

Massachusetts Health Data Consortium - 460 Totten Pond Road - Suite 690 - Waltham, Massachusetts 02451 - 781.419.7800 - www.mahealthdata.org - Copyright 2010

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